Specific Etiologies
Teacher Support Program for Learners with DeafBlindness
Cortical Visual Impairment (CVI)
Cortical visual impairment (CVI) is a disorder caused by damaged parts of the brain that process vision. Most common in babies and young children but can continue into adulthood.
A child with CVI has vision problems that are caused by their brain that can’t be explained by a problem with their eyes. CVI is a leading cause of vision loss among kids. In children, vision can get better over time, but it differs with everyone.
Resources:
- List of CVI Resources
- CVI Hub for Educators
- This resource is for educators to use and it provides webinars and tutorials to online classes. You can also look up resources for your state through the Perkins-Roman CVI Range Endorsees.
- Active Learning Space
- This resource is relating CVI and Active Learning. It is to find out how you can provide activities that can have a main focus on either vision or motor skills. It provides resources and strategies, as well as videos and things you can make to enhance vision during activities.
- Paths to Literacy: CVI
- This resource provides different blogs posted by ways to make zoom lessons more CVI-friendly, tips, and sample classrooms. As well as many more strategies.
- Tap-n-See Now Deluxe iPad App
- The “Big 3 Tool Kit” for Children with CVI
- his link provides different educational tools that can be used for CVI. Including apps for the iPad, light box (commonly used with CVI) or lightaide.
- 5 Fun and Easy Sensory Play Ideas for Babies and Toddlers with CVI
- DIY sound shakers, identify textures and explore nature, explore different scents, fun with stickers and sing, song sing along
- 20 Toys and Other Ideas for Children with CVI
- 20 ideas to build opportunities for children to use their vision in their daily routines.
- CVI at a young age – explanation for children
- Parent Caregiver Resources
- This website provides parent caregiver resources on CVI.
Educational Resources
- CVI 101: Educating Children with CVI
- What to Include in an IEP for a Student who has CVI
- This website provides information on IEP’s for students with CVI. As well as ways to include accommodations and modifications.
- CVI – An Educator’s Perspective
- American Association for Pediatric Opthalmology and Strabismus
- This website provides different links to products, books, and strategies etc. about information on CVI.
- Little Bear Sees – CVI
- This website provides links to blogs, books, organizations and support groups on information about CVI.
CHARGE
CHARGE syndrome is the most complex condition that we know, and the unique combination of true multi- sensory impairment with multiple other anomalies. People with CHARGE syndrome have difficulties with vision and hearing and also with the senses that perceive balance, touch, temperature, pain, pressure, and smell, as well as problems with breathing and swallowing, eating and drinking, digestion, and temperature control. CHARGE syndrome is a disorder that affects many areas of the body. CHARGE is an abbreviation for several of the features common in the disorder: coloboma, heart defects, atresia choanae (also known as choanal atresia), growth retardation, genital abnormalities, and ear abnormalities.
Understanding CHARGE Syndrome Online Course
A Checklist of Educational Needs for Individuals with Charge Syndrome
The Charge Syndrome Foundation: https://www.chargesyndrome.org
Usher Syndrome
Resources